Hello everyone! I would like to use this opportunity to vent about my struggle to find a diagnosis and treatment for my son's swallowing problem. Noah is my 2 year old boy. He's full of energy and affection! Noah has been suffering from frequent respiratory infections, asthma, and failure to thrive since he started eating baby food at 5 months old. Last January we discovered this was all due to trouble swallowing but we don't know why he has trouble swallowing. He is developmentally normal in every other way. A few months ago we went to an ENT doctor who said his problem was laryngomalacia. So he sent us to a pediatric ENT surgeon to fix it. When we went to see that doctor she informed us that laryngomalacia was not his problem. After she did a scope to look down his throat she sent us to third ENT doctor because she didn't know what the problem was. This doctor is planning on doing surgery but is not really sure if the surgery will fix the problem or not.
Last Friday was supposed to be Noah's surgery but when we went to see the surgeon he decided to postpone the surgery and do another test. We did the test Sunday and are waiting for the results. We are also going to see a Neurologist Wednesday to see if there is a neurological cause to all of this.
Oh, yeah I forgot to mention he has been on tube feedings for the last 4 months and has also been vomitting frequently. Also, our weekly trips to kansas city for therapy failed.
So the surgery is for a fundoplication, g- tube placement, and bronchoscopy. Hopefully, his surgery will be in the next week or so and he will start getting better and all this will be behind us soon. It has been a frustrating process because every time we think we have found an answer it turns out we haven't. We have exhausted almost all of our options so I'm really praying this will work! I will update next week what we find out from neurology and surgery.
Tuesday, August 30, 2011
Thursday, August 25, 2011
English 102
Hello! My name is Janeice Hukill. I am 31 years old and I have 3 children. I am an RN working on BSN which I will I will be completing in December. Next summer my hope is to start working on my masters. I have taken many online classes but I have never blogged. This is new to me as I'm sure it is to some of you as well. This should be fun!
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